{"id":55,"date":"2021-04-08T15:37:14","date_gmt":"2021-04-08T15:37:14","guid":{"rendered":"https:\/\/radarelrha.wpengine.com\/?post_type=stories&#038;p=55"},"modified":"2023-02-22T14:39:41","modified_gmt":"2023-02-22T14:39:41","slug":"invisible-illness-our-cf-story","status":"publish","type":"stories","link":"https:\/\/build-reporter-network.onourradar.org\/es\/stories\/enfermedad-invisible-nuestra-cf-historia\/","title":{"rendered":"La enfermedad invisible: Nuestra historia de la FQ"},"content":{"rendered":"<blockquote><p><b><i>Las personas con Fibrosis Qu\u00c3\u00adstica nunca pueden reunirse debido al riesgo de contagio entre ellas<\/i><\/b><\/p><\/blockquote>\n<p><span style=\"font-weight: 400;\">Dise\u00c3\u00b1amos e impartimos un taller de narraci\u00c3\u00b3n en l\u00c3\u00adnea de seis semanas de duraci\u00c3\u00b3n para ayudar a un grupo de j\u00c3\u00b3venes que viven con fibrosis qu\u00c3\u00adstica a encontrar amistad, comprensi\u00c3\u00b3n y confianza a trav\u00c3\u00a9s de historias digitales compartidas.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">We designed a six-week &#8216;story sprint&#8217; with the young reporters where they had two-hour virtual meetings every week and chatted with each other via a chat app. What emerged was a powerful set of stories. There were stories about:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">la sensaci\u00c3\u00b3n de estigma en la escuela<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">la dificultad de su rutina diaria<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">el estr\u00c3\u00a9s de la hospitalizaci\u00c3\u00b3n<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">la importancia de tener buenos amigos que les ayuden a apoyarse<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Este enfoque digital dio a las j\u00c3\u00b3venes la posibilidad de conectarse entre s\u00c3\u00ad utilizando herramientas con las que ya estaban familiarizados. El proyecto tambi\u00c3\u00a9n supuso que un joven participante de la India tuviera la oportunidad de relacionarse con un grupo de j\u00c3\u00b3venes del Reino Unido.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">We also ran a session called &#8216;<\/span><a href=\"https:\/\/designsprintkit.withgoogle.com\/methodology\/phase3-sketch\/crazy-eights\"><span style=\"font-weight: 400;\">R\u00c3\u00a1pido 8<\/span><\/a><span style=\"font-weight: 400;\">&#8216; where participants were given eight minutes to come up with eight ideas about how Cystic Fibrosis affected their everyday lives. We then discussed these themes and grouped them into eight main categories.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Cada taller sirvi\u00c3\u00b3 para profundizar en uno de estos temas antes de dise\u00c3\u00b1ar una campa\u00c3\u00b1a en las redes sociales como resultado final.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Puedes ver tus v\u00c3\u00addeos <\/span><a href=\"https:\/\/www.cysticfibrosis.org.uk\/news\/storytelling-workshop\"><span style=\"font-weight: 400;\">here.<\/span><\/a><\/p>","protected":false},"featured_media":74,"comment_status":"open","ping_status":"open","template":"","meta":[],"categories":[],"tags":[],"class_list":["post-55","stories","type-stories","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Invisible Illness: Our CF Story - Building a reporter network: a guide<\/title>\n<meta name=\"description\" content=\"We designed and delivered a six-week online storytelling workshop to support a group of young people living with Cystic Fibrosis to find friendship, understanding and confidence through shared digital stories.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/build-reporter-network.onourradar.org\/es\/stories\/enfermedad-invisible-nuestra-cf-historia\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Invisible Illness: Our CF Story - 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